I Made The Call and Thoughts on Cream

Okay, so I called my Gastro today and he is going to get me a referral to a Surgeon.  Here we go again.  I sure hope I get some help this time.  The last experience with a surgeon was horrible.

I didn’t even know this doc was a Surgeon!  My P.C. had referred me to him for this same thing.  He used this horrible tool down there after I told him how much pain I am going through and how sensitive I am and he bagged on me for practically being in tears.  He said “if your in pain now there is no way you will handle surgery”, I said, “Won’t I be asleep?” and he said  “Yes, but I mean during recovery.”  (Can we say Pain Meds?  Let’s say it together..shall we?..slowly..”Paaaiiin Meedddsss”.  Now faster and louder.  Just me. sorry.  “I CAN HANDLE FLIPPIN PAIN MEDS DURING RECOVERY!”)  So, basically, he bagged on me for being in pain and refused to help me.  It was his nurse assistant that suggested hot baths periodically that might help and I think he did give me some cream.

Oooh Cream, that’s the big thing now.  They give you Cream.  Cream to get your underwear all messy.  Cream to take the pain away or to cool the area down for an hour or so until you need to reapply it.  Isn’t Cream wonderful?  When, you run out, just call the pharmacy or if it was generic they suggested, feel free to go to the store and fork out more money and buy more.  Either way, why don’t you just get addicted to Cream.  Cream in an area where you never wanted to put Cream..unless you are that type of person..then you can have someone else put the cream on for you..but I digress.  I am tired of Cream.  I want a solution to the whole damn problem!

I wish I could tell the docs what to do with their Creams but it probably would not help the situation.  Right now, it does help…temporarily.

Thoughts On Seeing A Surgeon

When I was young I spent the first two yearss in the hospital with my metabolic disorder.  As I got older I was in the hospital every time I got the flu and put on I’V’s.  Those hurt.  My mother would take me to Children’s Hospital in Los Angeles every 3-6 months for a check-up where they would draw blood.  I did not look forward to it.  Sometimes the Phlebotomists had to stick me more than once..that hurt.

When I had my Appendectomy in 2000, the pain was excruciating.

I’ve lived through the pain of Migraine headaches where I’ve wanted to die as well as impacted feces, and vaginal warts.  The stupid doctor had the nerve to notify me that prostitutes get vaginal warts as I was in his office in agony. He used dry ice to burn them off.  Pain?  You bet!

Needless to say, the reason I write all this is because I am tired of this pain from these stupid Anal Skin Tags.  I am going to call my Gastro and have him refer me to a Surgeon.  I need to stop reading about the painful recovery process and just bite (or sit on) the bullet and deal with it.  These stupid creams the doctors are giving me are only temporarily relieving the symptoms but are not taking away the problem.

A bit more pain for a few more months to be normal again will be worth it in the end….Literally.

Not A Flash To Be Had

Went to my Primary yesterday and got put on Z-Pac.  Usually, that’s like a miracle drug for me so I really hope it works this time.  Getting really tired of feeling like crap.

Threw chicken, chicken gravy, cheese and Ruffles Potato Chips in the Crock-Pot for my husband for his dinner.  I hope it tastes like something and not crap.  We didn’t have any bread crumbs which is why I used the potato chips.

I bought myself a Purple 8″ non-stick frying pan and some red utensils plus my girlfriend is going to give me a large non-stick frying pan which I am going to use for my GF Foods to start cooking some of my stuff separate from some of my husbands stuff.  We don’t usually eat at the same time anyway but sometimes my stomach acts up and I swear I haven’t eaten anything with gluten in it.

My stupid Flash Player on the computer has stopped working and refuses to download no matter how much I try.  It will say it downloaded but then it still won’t work.  I don’t know who to call in to help.  The Geek Squad costs money.  Maybe they are worth checking into.  I totally  need the Flash Player as I cannot even play FB Games anymore or do much needed research on things.

 

Sick & Swap Meet

Woke up feeling a bit like crap today but not as bad as I thought I  would.  It actually started Friday with the hot/cold sweats and sore throat then turned into coughing, sneezing, ringing ears, etc.    Have to be over it by Thursday to see my new Nephrologist.

My husband and I went to the Swap Meet yesterday and I got a Hula Hoop which I am looking forward to using in the back yard for exercise.  I know I will suck but it will be fun to try.  We also got some animal beds for the animals.  Firepies’ is a tent and while she is not used to hers yet, I am trying to lure her into it with catnip and toys.  I think she will like it eventually.  She keeps going in and out of it now.

We are actually looking for wall pictures but the selection was extremely slim so we may go to a larger Swap Meet next wknd.

Doc Update and Other Things

I need to find a non-stick saute pan with a lid.  I bought a saute pan with a lid that is not non-stick and the first thing it did was made my  food burn and stick to the pan.  Can we say Annoying!!!

My theory came true but not because I mentioned it.  I got a really bad headache last night and had to take my strong medicine.  I think it was because of my mental day on Wed.  A lot of times when my brain acts up; I pay for it later.    I am praying I am not getting sick today though because I woke up feeling like crap.  I shouldn’t be to surprised because while at the hospital, people were coughing, sneezing, etc. and I still have my wonderful immune system.

I saw my Gastro yesterday and he said the main way to confirm I have Celiac would be a biopsy but the biopsy would not come out correctly unless I stopped eating gluten for a while which I am not going to do.  Plus, if the biopsy came out positive the treatment would be to go on a total, gluten-free diet which I’m doing anyway so we may as well just things alone.  I just term myself Celiac and live this way.    It’s easier to say I am; then to say I have a wheat intolerance.  I don’t know about Rye or Barley anyway.  It’ s not something I’ve really tested on my system.

My Gastro also checked my Anal Skin Tags.  Luckily, it was quick and he didn’t have to use the invasive tool because he can SEE them.  He confirmed they are Skin Tags and gave me a new cream to try out, plus he said if this doesn’t work he will refer me to a surgeon.  Please pray it works..

Today is the B-Day of someone I am not in contact with.  She is 7.  I don’t know if I can wish her a Happy Birthday on Facebook or not.  If her father announces it,  I suppose I will wish her one in the comments section.  This will be the first year ever that I did not get her a birthday present.  She will alway’s be in my thoughts.

Day of Mentalness

Yesterday I visited my doctor at CHOC.  Yes, I’m an adult and still visit a Children’s Hospital due to my metabolic disorder.  It’s always fun when the nurse comes in and having not read the notes looks at you with surprise and confirms, “You’re the patient?”  I am gaining weight which is good (can we say more new clothes in the near future?) and they upped my Protein to 44 grams a day.  This is interesting because what they are doing is slowly upping my Protein to see how much I can handle.  With my disease, I am supposed to be on a low-protein diet so technically they are raising it to see what will make me sick.  Fun.

I use a cup to mix my formula which makes a total mess.  The lid either goes on to loose or to tight and and if you don’t hold it correctly, formula goes everywhere.  They told me about a cup called Sensa which supposedly has a ball in it that helps to mix the formula as well as has a better lid so I ordered one yesterday.  I also get to try a formula which is already mixed up.  I like the idea of it being already mixed up provided it doesn’t taste like crap.

After the doctor appointment yesterday, I had a Therapist appointment in the afternoon.

So, my day yesterday was really mental.

I am so happy my marriage is going well right now.  I love my husband so much.

The issues I deal with now have to do with my family.  Choices they have made which affect me indirectly but also directly in a way because I used to be semi-close to one of these relatives and I will really miss one of them.  Have you ever seen the movie, ‘South Pacific?’  There’s a song I’m thinking of now… this is the part I remember that relates.

“You’ve got to be taught before it’s to late.  Before you are 6 or 7 or 8.

To hate all the people your relatives hate, You’ve got to be carefully taught.

You’ve got to be carefully taught.”

The other mental aspect now is the person in my mind that will be… until I know for sure that he is dead.

Needless to say, today I need to get dressed and partake in some physical activities.  I do have one more doc appointment as well.  this one I am looking forward to a bit as I am sincerely hoping for some help.

Quick Snack and Quick Entry

This is a quick one but I just ate frozen, gluten, wheat-free, pumpkin pie. It was still frozen because I was to lazy to heat it up all the way.

Gluten Free Info

So I found another site that sells Gluten/Wheat Free foods for like 50% off retail price.  Unfortunately, not a lot of actual meal type foods so I have to get creative;  but I am saving a lot of money anyway.

We did go to B.J’ Restaurant & Brewery and Claim Jumper lately and both have Gluten Free Menu’s.   I wish more take-outs did.

I purchased the book, “Gluten Free For Dummies” and it is very informative.  It talks about how you can have all the tests done (which I haven’t) and they can all say you are negative for Celiac but technically, you can still have Celiac Disease.  Sometimes, I wonder because I still have stomach issues even when having had no Wheat or Gluten.  However, I’m not sure it’s been two months yet since I’ve been on this Gluten Free diet so it may not be cleared from my system all the way.  I also read that Gluten can cause headaches, osteoporosis, and even early menopause..all of which I have experienced.  I have noticed lately the headaches have been getting much better. (knock on wood).

Every time I say that I seem to get a migraine within a day or so.) .

Changing Into My Husband

I need to start exercising again so I tried the StationeryBicycle last night which was a terrible idea.  Even though I sat on a towel.. with these terrible anal skin tag things, I thought I wa going to die.  I am still burning and am just surprised my whole ass isn’t burning off.

They say when you get a transplant of pretty much any kind apparently, you can take on the characteristics of the person who donated the kidney to you.  I believe that has happened with the qualities of my husband who was my donor.  I am starting to agree with him in some aspects in the way he feels about children,  I have been watching more sports,  I have become less social..  It’s scary how much more like him I am becoming. Aalthough I cannot see myself adapting a lot of that lame guy sense of humor any time soon…that’s for sure.

 

Censorship and Soliciting

I have two blogs at two different sites.  One is private elsewhere and this one is public so friends.family, whomever can keep updated on what is going on.  This one actually reaches a very wide audience..audience.  am I on a stage?  Is this a show?  No, this is my life.  But, I digress.  The point is there are things on this site I would like to discuss but cannot because I do not want to offend my family and friends which is why I have my other blog.  Actually, I suppose my other blog site also can reach a wide audience of people as well if I make the posting public, however, it is not the same as here.  Anyway, it is hard and sad at times to censor what is written here or not discuss a topic because of who may be reading this one..but that is what I do.

I think  today’s topic will be ‘ Soliciting’.  I have a funny ‘No Soliciting’ sign that says, “We Love Our Vacuum, We Found God, and We Give At the Office.”  However,  someone tell me, what is ‘soliciting’?  I continue to open my door and find flyers for real estate, restaurants, voting, picnics, churches, etc.   There is less knocking on the door but the paperwork still arrives.  Is that not still soliciting?  My husband says soliciting is when someone one is trying to sell you something.  I got into it with the neighbor about churches coming to the door because he believes preaching is not soliciting.  But, they are still trying to convince me to attend their church and they still knock on my door and invade my privacy.

Would you rather I get a sign that says, “Keep Out..Go Away…Don’t Knock On The Door!”  Sheesh, now that would be rude.

Somebody knocking on the door, Somebody ringin the bell, Somebody knocking on the door, Somebody ringing the bell, Do me a favor,  Don’t open the door.

 

Have a good day.