One Day Healthy= 2 Days Sickly

Okay, so I’ve been sick for two days which does and doesn’t surprise me.  With my health for every one day of exciting activity, I get 2 or more days of sickness.  Cedars called and said my infusions are delayed due  to insurance reasons.  That’s not a surprise either.  I do think I am going to get dressed and go to Von’s today though even if I am sick.  I am totally craving an apple.  I think they also have gluten-free Cous-Cous and I need more bread.  I’ll just get some basics and hold off on Whole Foods until tomorrow or Thursday.  I totally need to make a run to Whole Foods soon because they have everything.

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Crazy Casino Trip

Yesterday, I went on my first bus trip to a casino with a friend.  Let’s just call the friend Amy.  The bus trip company or casino company gave us $10.00 in free slot play on the casino card, however, it also cost $10.00 to ride the bus.  We got 3 1/2 hours at the casino despite the fact that the ad stated 5 hours.

Anyway, I knew Amy; was slow because  she has had many previous problems in the past, plus, within the past year she has survived a coma or brain aneurism.  However, I did not know how many problems she was dealing with.  I think she wants/tries to be independent but she really isn’t and should not be left alone to often.

She had severe freak-outs; – when they forgot to give me a badge when we got on the bus (you need a group badge to get on and off the bus), when they took her Driver’s License before going to another room to wait for her name to be called for a club players card, when we were on the way home and she thought we were at our exit but we weren’t and she was practically insisting we needed to get off the bus because “There is a chicken place here and there was a chicken place where we got picked up.” She got annoyed with me when I got a little disoriented on where things were once or twice because I had forgotten we had to go to a different building and had a question about my club card, she had brought a big purse instead of a fanny pack but it turned out to be to heavy for her to carry around so she kept leaving it and walking away  so I was constantly keeping it with me or worrying about it getting stolen, she spent almost her entire budget within the first half hour on a nickel machine because she insisted on playing around 80 cents; despite th fact I told her and even set the machine up for her to play a dime,  (she was broke by dinner so I bought for both of us) she would wandered away and  forgot where I was and supposedly had me paged, but I didn’t hear the page because I am hard of hearing.  Plus, I could not call nor could she call me because I had her purse with her phone in it but eventually she did find me again so we quickly got dinner and ate it on the bus.

Then, after getting dinner, I had to call the restaurant because although the menu said it was stuffed crab with shrimp; it did not say it was fried.  I called to ask what type of oil they fried it in; the restaurant guy said Canola. But, I am wondering since my body had a yucky accident while sleeping last night.  Also,  while at one machine; a lady sat at the machine next to mine and decided to light a cigarette and blow and wave the smoke directly in my face.  I immediately cashed out, since I am not a smoker and the smoke really is not good for me; but I could totally tell it was deliberate and when I stood up; I looked at her and she had the nerve to smile at me.

I said a prayer and took my and Amy’s things to a table nearby to wait for Amy and I watched as the stupid, bitch..I mean lady..I mean woman used the machine for maybe 5 or 10 minutes before leaving.  If I weren’t a Christian; I’m sure I could have said a lot and I really wanted to comment on how rude that was but I was already stressing over Amy and wherever she was and having visions of abductions or whatever because you hear a lot about that nowadays.  I had enough to worry about then getting in a fight in the casino with some stupid, rude, stranger.

Before we had gone; my husband had mentioned the idea of Amy and I going once a month on the bus trip and maybe trying different casino’s.  Unfortunately, Amy has already latched on to the idea and she even came over today and thanked me for yesterday and said she had fun and maybe we can go somewhere else next.

I think I am going by myself next time.  I may go again with her but I would much prefer someone else with us.  My husband says to give her another chance but, it would have to be the same place and with her memory and how she spends her money; I don’t know.  Maybe, we can get her mother to join us and then I won’t feel like I am stressed out and playing Babysitter.   Right now, I am trying to deter her and mentioning going to the mall, or back to the vintage store, or the restaurant or even just clearing off my pool table so we can play pool soon.  I don’t mind hanging out with Amy, but considering the situation; 3 and a half hours turned out to be a blessing this time.

Amy is 8 months older than I, by the way.

Short Health Post

Cedars-Sinai called and I have ‘Hypogammaglobulinemia’.?  It’s a weak immune system and you get 4 hour I.V infusions once a month for like 6 months.  It’s really rare and I guess only like 1 in 4% of people actually get this.  So, now I have two disease type things people can hardly spell or pronounce: Propionic Acidemia and this.

My Storm Watch & Future Preparation

It’s Storm Watch.  Really.  Yes, ..I’m watching for it.  They’ve said for two days now we are supposed to have a storm with thunder, lightening, etc.  We had a wee bit of rain yesterday and last night, but thats it.  I need to go grocery shopping.  Whole Foods is a ways away.  I don’t want to spend an hour shopping at and have to drive home in the rain.  I don’t like driving when people don’t know how to drive and half the time they don’t use their blinkers anyway, so you should see it when its raining.  I found 27 pages of gluten-free foods at Whole Foods.  I am still watching for the storm because after it comes and goes, I can go shopping.  In the meantime, I am trying to finish what I have here. 

I am beginning to wonder if Blue Bonnet Margarine is really gluten-free.  Due to some stomach issues and that’s what I have increased lately;  I think it may not be.

In my last entry;  I talked about writing my book.  I’ve re-started it, albeit very slowly.  I also talked about my kidney transplant 6 years ago.  I got to thinking and talking to my husband.  6 years is a long time.  While his kidney is great and I have had no problems in that regards, that does not mean I will not have a rejection ever.

  I would really love to live in a mobile home park before I get to sick to enjoy it.  Why?  Because they have pools and club-houses and sometimes, activities and maybe I would want to walk around more in a smaller type community.  My husband said we can continue looking.  Who knows? maybe we can even rent something for a bit until we retire and move where we really want to go. 

I also thought of something else in the same regards.  Should anything happen to me, I would want someone to finish my book.  This is how important it is to me.  I just talked to my sister.  She has always wanted to be a writer.  Heck,  I even encouraged her to be a participant in the last Nanowrimo event.  I was so proud she participated.  She said she will finish the book should anything drastic (my passing) occur. I have already written the ending of the story at the top.  She would have all my diary notes and my manuscript to go from.     I very much doubt anything will happen but, it is in God’s hands, not mine.  

 

Asking For Encouragement

yesterday was the 6th anniversary of my kidney transplant.  I am so thankful to my wonderful husband for donating his kidney to me.  Kidney-wise, I’ve been doing well.

I went for a blood test yesterday also because according to my doctor at Cedars, I may have a gene that affects my immune system which is why I seem to get sick like every 2-3 weeks.  It is so annoying to get a sore throat, cold, etc.  ALL the time.  If I have a low part of my immune system; they can send me for an I.V. infusion of some type for like four hours twice. (not twice a week, but he said twice… I’m not quite sure how often.) in order to pump up my immune system.  I am sort of hoping they find something and we can do this.

My next step after that health-wise is a Hysterectomy.  I am semi-young but am having problems in that regard.  I just need clearance from a few of my other doctors which I am working on.

Enough health talk – I started writing my book again, basically from scratch.  I am following from old diary notes and memory.  I am changing all names and a few of the details.  I may write it as factual first and then see what exactly to change.  My problem is this is really tough on my mind and I really need motivation to continue.  I have wanted to do this for a while.  I believe it will help others in the same type situations..maybe to realize how people can change from being good to suddenly gaining control without you even realizing.

Unfortunately, I am the type of person that needs people to ask, “How is your book going?”  “Are you still writing?”  or say things like, “You can do it.”  I would like to request this type of help from my friends on Facebook but I don’t know how to ask for this type of encouragement.

Film and Children Review..My Opinion

There has been a lot I have wanted to write about but I haven’t had/made time.  My husband and I both have really bad colds, plus, we went to Cedar Sinai yesterday for my annual doctor visit.  But, today,  I am going to discuss a film we saw this wknd.

If you’ve read any of my previous posts; you know I help the homeless in my  own way.  So, you know I am interested in helping the homeless, feeding the hungry, etc.  You also know I don’t have children.

There is a film out titled: A Place At The Table which is supposed to focus on the needs of society and the facts about being food poor and obesity.  While interesting and I did learn a few facts, they totally aimed it toward Child Hunger.  They also dared to say the religious organizations, food banks, etc. don’t help much and made it mainly a government issue.  I don’t agree with this because I think the government is getting to involved in everyone’s lives anyway.  But, that’s my opinion.  Anyay, back to the film.  the women interviewed were mothers…mostly single.  I don’t recall more than one person being interviewed and hungry (food poor) that was single or just child-less and food poor being interviewed.  They skipped quickly through the diabetes issue and focused quite a bit on the food stamp issue, being sure to point something interesting about Obama and his growing up.  I won’t tell you, in case you want to see the film.

Needless to say, upon leaving the film, my husband was almost convinced of my hating children because I was not impressed with the film.  I was not impressed because I did not got to see a film on Childhood Hunger in America.  I went to see a film about everybody that is hungry.  I did not wish to hear so much about the school lunch program.  What about more of the other, average  americans like the college students, or the ones who are simply losing their jobs and apartments, or the people who are getting sick with medical problems (not just diabetes or obesity) and cannot afford food.  There could have been more interviews with those people.

I look at the bigger picture.  I am sorry but to me, it is not All About The Children.

Do you realise a lot of these children that everyone keeps going on and on about are the same children that wind up killing or playing some sort of revenge on the adults in their lives?  Shooting their parents, getting emancipated from them, reporting them (the parents) for child abuse.  They know their rights now (because they have to many) and they use it against the adults.

 

 

Fast March & Question 4 You

Wow, It really has been a while, hasn’t it?  March snuck up on me way to fast as did doctor appointments.  I got a phone call with a reminder of a doc appointment for this Monday which I could swear was in April so then I had to rush to the lab.  I also saw a doc about my headaches who put me on a new headache med as well as adjusted my Topamax and one of the two just makes me fall asleep around 8 or 9 p.m. or earlier….during my favorite t.v. shows.  It sucks because I seriously don’t remember the endings and I really was not one to fall asleep while watching t.v before.  To me, that is a bit scary.

In amusing news, Firepie is a bit annoyed her Aunt Lisa and her husband got themselves a cat.  When my friend Lisa came over to visit.  Firepie was all over her purse (as usual) and when Lisa was ready to leave Firepie didn’t want to get off of it and yelled at her.  She never does that!  I know she can smell Lisa’s new cat.  I discussed it with Firepie and she just isn’t sure about the situation.  When Lisa comes here; I guess we are supposed to talk about Firepie and give her the attention not the new cat despite the fact that Lisa and her husband saved it’s life.  Other then that, I guess Firepie is okay with it.

So, someone on Facebook asked what was one thing you are happy having done or accomplished so far and what was one thing you regret not having done or accomplished. I responded that I am happy having survived an abusive relationship but am annoyed at having not written the book about it yet.  I have no more excuses.  So, I sat down yesterday and started writing.  If I take it slowly, it will eventually come together.  I am going to work on it a little at a time (nothing like the Nanowrimo) competition.  This is a true story of my life and I really think it will help my mind to get this all out.  I started with notes yesterday, but I think I am going to start again today in actual story form and see where it takes me.

  Here’s the question for you: What are you happy you’ve done or accomplished in life so far and what is one thing you regret not having done or accomplished?  Just to add:  Do you think you may ever accomplish it?

*I would love to hear your replies.