Test Didn’t Happen

So, my Cardiologist want s me to take Treadmill Stress Test or Myoview..part of which is a Lexiscan. It’s a two-day test.  One day of which I am on the treadmill for a bit and I have an I.V. in my arm and they inject some stuff in me at the last minute of walking and the other part of the test is resting along with radiology pics.  I was told to take all my a.m. pills, but the first day I messed up and only took my anti-rejection so they did the resting portion first and told me to return on Friday to do the treadmill part.  They also said NO Caffeine whatsoever (my headache medicine has caffeine in it) or coffee, etc. 12 hours before the test.  So, here’s the thing.  I woke up on Friday, the day of the test with a splitting headache (Migraine) and could only take a Tylenol.  I took all my a.m. pills on an empty stomach.  I was dry heaving before I even left the house but I said a prayer and figured I would get through.  I was wrong.  The cardiologist girl said, “You can have caffeine before this test.”  By then, it was too late.  Turns out, the radiologist had given me the wrong information.  I had the I.V. in and I was ready but I took one look at the treadmill with my throbbing head and knew it was not going to happen.  Plus, my stomach was starting to churn along with my head.  So, they re-scheduled the test to Monday and unhooked me.

Originally, I thought I could drive home but then re-thought quickly and had them call my husband from work to come pick me up. (We got my car today).  By the time he showed up, I was vomiting.  After I got home and tried to eat and vomited again, I finally took a pill and slept…woke up..ate some more and slept some more until 5 p.m.  During the time I was awake, I called the dr. and made sure a cup of coffee would be okay Monday morning.  I also called Security at the hospital to let them know my car was there.

The hospital system is so messed up.  They really need to give patients (especially patients who have migraines) like me the right information when it comes to caffeine.

Doctors Delays

I don’t understand these medical facilities that think they can just make whatever rules/changes they want and their patients are just gong to jump to change along with them.  I have Hypogammagobulynemia.  Hey, I can barely pronounce it, much less spell it.

Anyway, I am supposed to be starting IGG infusions or injections soon.  Last I heard, they were getting approval for the first ones to be done here at  the house or in a local facility near me.  We live in Orange County and this test was authorized and approved by Cedars-Sinai in Hollywood, CA.  but I was told I would go to a clinic or facility somewhere in Orange County.  I just called Cedars to find out what is taking so long and now they are trying to say they cannot get approval and I will have to go to Cedars for these infusions.  I don’t think so.  I explained that would be a hardship because I do not drive freeways and my husband would have to take a day off work every month to drive me.  My doctor at Cedars had already said it could be done here in Orange county.  I gave them the name of my metabolic doctor here in Orange County and asked why I cannot simply go to CHOC (Children’s Hospital of Orange County) to have the infusions done since that is where I go to see my metabolic doctor.  So, Cedars is trying to work that out and I am expecting a call back today.

I am really hoping to get this started soon, as after this is done for a few months; I can get another procedure done which will really help another aspect in my life.

Being chronically ill is a pain..in more ways than one.

A Tough Trip For An Apple

I made it to Von’s yesterday despite the fact I still felt like crap.  I almost didn’t, as even my eyes were buggy; but I drove super slow as I had to pick up my prescription anyway and Von’s is right across the street from there.  I was lucky to find some McDougall Gluten-Free Soups while there and of course, I picked up a few Apples, as well as a few other necessities but I could barely think and just wanted to home.  I did get some Whipped Butter and noticed my stomach did much better since I started using that instead of Blue Bonnet.  Of course, now I take a Lactaid before I eat anything with butter but whatever.

Anyway, I must have looked like death and I know when the cashier asked me how I was; I told her I was sick and I babbled something about shopping and apples and wanting to just go home afterwards.  Two store employee’s asked if I needed help to my car and I told them No.  However…

Upon, going to my car; I got a bit disoriented and could not find it for few.  But, after wandering I did find it.  I noticed a Von’s employee sort of following me and when I got to my car he started helping me put my bags in.  I said, “Oh, that’s nice.  I’m sick today.” and he commented that he noticed tht it looked like I could not find my car.  So, there I went again babbling about why I went shopping for an Apple and going home to go to bed.

Then, in the drive thru window of the pharmacy, I had to turn the air conditioning on in the car due to suddenly getting hot while waiting for my prescription as I was having hot/cold chills.

But, I really Am getting better.  I am not sleeping the entire day.  I am getting a few things done during the day.  I am eating again and   The Apple was delicious.

Crazy Casino Trip

Yesterday, I went on my first bus trip to a casino with a friend.  Let’s just call the friend Amy.  The bus trip company or casino company gave us $10.00 in free slot play on the casino card, however, it also cost $10.00 to ride the bus.  We got 3 1/2 hours at the casino despite the fact that the ad stated 5 hours.

Anyway, I knew Amy; was slow because  she has had many previous problems in the past, plus, within the past year she has survived a coma or brain aneurism.  However, I did not know how many problems she was dealing with.  I think she wants/tries to be independent but she really isn’t and should not be left alone to often.

She had severe freak-outs; – when they forgot to give me a badge when we got on the bus (you need a group badge to get on and off the bus), when they took her Driver’s License before going to another room to wait for her name to be called for a club players card, when we were on the way home and she thought we were at our exit but we weren’t and she was practically insisting we needed to get off the bus because “There is a chicken place here and there was a chicken place where we got picked up.” She got annoyed with me when I got a little disoriented on where things were once or twice because I had forgotten we had to go to a different building and had a question about my club card, she had brought a big purse instead of a fanny pack but it turned out to be to heavy for her to carry around so she kept leaving it and walking away  so I was constantly keeping it with me or worrying about it getting stolen, she spent almost her entire budget within the first half hour on a nickel machine because she insisted on playing around 80 cents; despite th fact I told her and even set the machine up for her to play a dime,  (she was broke by dinner so I bought for both of us) she would wandered away and  forgot where I was and supposedly had me paged, but I didn’t hear the page because I am hard of hearing.  Plus, I could not call nor could she call me because I had her purse with her phone in it but eventually she did find me again so we quickly got dinner and ate it on the bus.

Then, after getting dinner, I had to call the restaurant because although the menu said it was stuffed crab with shrimp; it did not say it was fried.  I called to ask what type of oil they fried it in; the restaurant guy said Canola. But, I am wondering since my body had a yucky accident while sleeping last night.  Also,  while at one machine; a lady sat at the machine next to mine and decided to light a cigarette and blow and wave the smoke directly in my face.  I immediately cashed out, since I am not a smoker and the smoke really is not good for me; but I could totally tell it was deliberate and when I stood up; I looked at her and she had the nerve to smile at me.

I said a prayer and took my and Amy’s things to a table nearby to wait for Amy and I watched as the stupid, bitch..I mean lady..I mean woman used the machine for maybe 5 or 10 minutes before leaving.  If I weren’t a Christian; I’m sure I could have said a lot and I really wanted to comment on how rude that was but I was already stressing over Amy and wherever she was and having visions of abductions or whatever because you hear a lot about that nowadays.  I had enough to worry about then getting in a fight in the casino with some stupid, rude, stranger.

Before we had gone; my husband had mentioned the idea of Amy and I going once a month on the bus trip and maybe trying different casino’s.  Unfortunately, Amy has already latched on to the idea and she even came over today and thanked me for yesterday and said she had fun and maybe we can go somewhere else next.

I think I am going by myself next time.  I may go again with her but I would much prefer someone else with us.  My husband says to give her another chance but, it would have to be the same place and with her memory and how she spends her money; I don’t know.  Maybe, we can get her mother to join us and then I won’t feel like I am stressed out and playing Babysitter.   Right now, I am trying to deter her and mentioning going to the mall, or back to the vintage store, or the restaurant or even just clearing off my pool table so we can play pool soon.  I don’t mind hanging out with Amy, but considering the situation; 3 and a half hours turned out to be a blessing this time.

Amy is 8 months older than I, by the way.

Film and Children Review..My Opinion

There has been a lot I have wanted to write about but I haven’t had/made time.  My husband and I both have really bad colds, plus, we went to Cedar Sinai yesterday for my annual doctor visit.  But, today,  I am going to discuss a film we saw this wknd.

If you’ve read any of my previous posts; you know I help the homeless in my  own way.  So, you know I am interested in helping the homeless, feeding the hungry, etc.  You also know I don’t have children.

There is a film out titled: A Place At The Table which is supposed to focus on the needs of society and the facts about being food poor and obesity.  While interesting and I did learn a few facts, they totally aimed it toward Child Hunger.  They also dared to say the religious organizations, food banks, etc. don’t help much and made it mainly a government issue.  I don’t agree with this because I think the government is getting to involved in everyone’s lives anyway.  But, that’s my opinion.  Anyay, back to the film.  the women interviewed were mothers…mostly single.  I don’t recall more than one person being interviewed and hungry (food poor) that was single or just child-less and food poor being interviewed.  They skipped quickly through the diabetes issue and focused quite a bit on the food stamp issue, being sure to point something interesting about Obama and his growing up.  I won’t tell you, in case you want to see the film.

Needless to say, upon leaving the film, my husband was almost convinced of my hating children because I was not impressed with the film.  I was not impressed because I did not got to see a film on Childhood Hunger in America.  I went to see a film about everybody that is hungry.  I did not wish to hear so much about the school lunch program.  What about more of the other, average  americans like the college students, or the ones who are simply losing their jobs and apartments, or the people who are getting sick with medical problems (not just diabetes or obesity) and cannot afford food.  There could have been more interviews with those people.

I look at the bigger picture.  I am sorry but to me, it is not All About The Children.

Do you realise a lot of these children that everyone keeps going on and on about are the same children that wind up killing or playing some sort of revenge on the adults in their lives?  Shooting their parents, getting emancipated from them, reporting them (the parents) for child abuse.  They know their rights now (because they have to many) and they use it against the adults.

 

 

HouseKeeper & Horror

We had housekeepers come yesterday (I’m lucky if we hire someone maybe once a year) and they did okay but they organized a drawer I didn’t want them going into (they should not have opened any drawers at all) and they ruined our range hood by scrubbing it so hard they scrubbed the paint off it.  It seriously looks like crap now.  Today, I have to start putting all the stuff away that we put in the two rooms we didn’t allow them in.  Isn’t it sad how we have to literally put all our stuff away so the housekeepers can clean?  Something is wrong with that picture.

Anyway, I tried to stay away so as not to be exposed to the chemicals with my wonderfully, weak immune system and I took myself to see the movie, ‘Mama”.  You may like it if you liked the movie, ‘Lady In the Water.’  It had a bit of a plot but a weird ending.  In  my opinion, I don’t think it was “Horror Movie” at all.  You could call it suspenseful if you want.  Of course, I read True Crime.  Those are more horror than any movie such as this and if you’ve ever seen movies about Ted Bundy, The Guyana Tragedy or even the Holocaust; those are real horror. versus some of this Hollywood crap.  Although, if you want to discuss Hollywood.  Go back to Friday The 13th, Nightmare On Elm Street, and Halloween, if you want horror.  The new ones just don’t compare.

Flash Memory

So, we went to IHOP last night and I ordered the wrong crepes.  That isn’t hard to do because they have like 1,000 choices, but I am gluten intolerant and have to be careful.  Needless to say, I am paying for it.  I can only;y eat the Fruit Crepes.  I got the Fruit Dessert Crepes.  Not, the same.  It had some weird filling in it.  I should have known better.  My fault..whatever.

Have you ever had Flash Memories?

I just did and they drive me nuts sometimes.  “Flash Memories” or that’s what I call them are when a memory just comes from out of nowhere for no reason whatsoever.  I was just taking a bath and had memories of the time my grandmother was dying and I got brave enough to tell her I loved her and she looked me straight in the eye and said, “Who is that?”  I was really young then, so I ran out of the hospital room and back to our motor home…and the time my dad was dying and I could not be near him because it was too painful to watch, and the time my friend died but nobody from her family bothered to tell me.  Plus, the time my mother got sick and was dying and called me by my sister’s name, as well as the times she continually bitched at me about not liking the facility she was in because she wanted to go back to her mobile home.

But, the weirdest thing is:  the tears didn’t come until I remember my animals who died.  My first Fur-Children of my own.  Nobody can tell me animals don’t have souls or don’t go to Heaven.  I will alway’s believe they are over the Rainbow Bridge right now playing with the rest.

Mommy still misses and loves you Sweet Babies and alway’s will.

Scan0011

Dog Door Drama

Today is the 3rd doc appointment this week.  Tired of docs, and I have more appointments to schedule soon for others.

Plus, now my husband is starting to feel sick.  He’s got the same nose crud going around that I just got over.

Last night I had a dream that it was a bad storm and my sis and I were together and for some reason, my cat wass at the door wanting to go out (she is an indoor cat) and my sis let her out.  I was like, “What did you do?” She doesn’t go outside!” and my sis said, “She wanted to.  She’ll come back.”  but, I got dressed and went out in the rain to find her.

Then, I woke up this morning to discover the motor on the dog door had stopped working and the cat could go out if she wanted to.  My husband said she probably won’t because she knows she isn’t allowed in that room and not to try the door; but she sneaks in that room periodically and she is really smart.  She knows the difference in sound.  She has gotten out before when that door didn’t work.  So, I am going to monitor when the door to the office is left open and close her in another room when it is.   I am not risking losing my baby while we wait to purchase a new dog door.

Sorry so long..No excuses

Gosh, I hadn’t realized how long it’s been since I’ve written.  I try to write at least every other day.  I won’t use the I’ve been sick excuse (although I have) because that would be annoying and you would get tired of hearing it.  I just finished the last day of my Z-Pack today and started feeling a bit better yesterday.

I just finished playing Wii for an hour.  I consider that a work-out.  It was Wii Bowling, Tennis, Ping-Pong, etc.  but it still kept me moving so it is still considered fitness for this girl.

The weather today is cold for us.  I say for us because if I whine about the weather to much, my relatives in WA like to remind me that they have snow or are freezing or whatever; like it makes a difference.  I don’t choose to live in those type area’s where it is even colder to affect my headaches and sinuses.  I am not a cold weather person at all.

I saw my Metabolic Specialist yesterday who was quite impressed with the changes I’ve been making since I started seeing him.  Although I do need tokeep taking my pills correctly.  It gets tough sometimes with as many pills as I have to take; but that’s why I am on disability and it is nobody elses responsibility but my own.

As my husband keeps reminding me; my health is the most important thing in my life to keep track of.

Health & Helping

I saw my doctor yesterday as a follow-up to surgery and I am doing very well.  He actually said the pain should go away completely soon and was surprised I only needed one Vicodin while recovering.  Well, I am a Migraine Sufferer and have been told I have a very, high pain tolerance.  One doctor or nurse went so far as to tell me if I ever gave birth, I probably would not have a problem.  Guess, I’ll never know.

I helped someone else anonymously on Aidpage.com.  She had written her address on the wrong page so I simply sent a toy to her for her daughter for Christmas.  It is coming directly from Walmart and I don’t think my name will be on the label since it is being paid through Pay-Pal,  so she will have no idea who it is from.  Now, that is the way to get a Christmas Present.

I know I need to stop spending money as I am getting a bit nervous about the upcoming bill, but I do need to go to Walgreen’s for basics and I heard they are having a toy collection for Chips For Kids so maybe one more thing.  I wish I were rich and could afford to help everyone who cannot afford Christmas.  It’s my favorite holiday.  And, every day there is a new story on Aidpage.com.  It’s getting closer to Christmas yet the stories keep coming and coming.

Just like the Mushrooms in my backyard, per yesterday’s post.